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Stories From Our Community

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Alim
The Problem with “Nearly” People view the world in absolutes. Things are either completely right or wrong. Completely the same or not. For those of ...
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Annie
It’s often said that parenting is a never-ending learning experience. When your child has a facial difference or disability, the learning is compounded several ...
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Fernanda
Growing up with a facial difference in Colombia, I always wished for a support system. I never dreamed that I would find one 27 years later ...
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Alice
Growing up, I dreamt of a career working with children and making a real impact on their lives. My recent experience volunteering as a leader ...
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Trish
Like most people, I didn’t give much thought to the inequities and barriers experienced by the facial difference community. In 2020, that changed. The year ...
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Parker
Hi, I’m Parker and I have Goldenhar Syndrome. I have some big health challenges along with my facial difference – I was born with tricuspid ...
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Trixie
I used to hide under my hair. I wanted to stay unseen. In the past few years, that has completely changed. In 2019, I stepped out ...
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Jill
I read about the call-out to participate in the Beyond My Face awareness video through social media, and I jumped at the opportunity. I wanted ...
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Alexis
Hello! I am Alexis from St. John’s, NL, and I just turned 11. I love being active: I do aerials, gymnastics, horseback riding and track, ...
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Tyler
Being introduced to Camp Trailblazers in my early teens was life changing. Growing up with a cleft lip and palate, I was lucky to have ...
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Hadi
My story as a burn survivor began when I was three years old. I was playing in the kitchen of my home in Iran and ...
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Lauren
Appearing in the Beyond My Face awareness video for AboutFace was very meaningful for me because the message to see beyond my face is more ...
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Ani
People have always called me an open book. I am told that I am authentic, with no pretense or mask of perfection. And people seem ...
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Anita
The concept of beauty – how society perceives it and what it truly is – is something I have spent many years exploring, for two reasons. The ...
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Jeffrey
My friends know that I love to joke and my smile is a big part of who I am. It wasn’t always that way. ...
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