Stories From Our Community

It’s often said that parenting is a never-ending learning experience. When your child has a facial difference or disability, the learning is compounded several ...

Growing up with a facial difference in Colombia, I always wished for a support system. I never dreamed that I would find one 27 years later ...

Growing up, I dreamt of a career working with children and making a real impact on their lives. My recent experience volunteering as a leader ...

Like most people, I didn’t give much thought to the inequities and barriers experienced by the facial difference community. In 2020, that changed. The year ...

Hi, I’m Parker and I have Goldenhar Syndrome. I have some big health challenges along with my facial difference – I was born with tricuspid ...

I used to hide under my hair. I wanted to stay unseen. In the past few years, that has completely changed. In 2019, I stepped out ...

Hello! I am Alexis from St. John’s, NL, and I just turned 11. I love being active: I do aerials, gymnastics, horseback riding and track, ...

Being introduced to Camp Trailblazers in my early teens was life changing. Growing up with a cleft lip and palate, I was lucky to have ...

My story as a burn survivor began when I was three years old. I was playing in the kitchen of my home in Iran and ...

Appearing in the Beyond My Face awareness video for AboutFace was very meaningful for me because the message to see beyond my face is more ...

People have always called me an open book. I am told that I am authentic, with no pretense or mask of perfection. And people seem ...

The concept of beauty – how society perceives it and what it truly is – is something I have spent many years exploring, for two reasons. The ...

My friends know that I love to joke and my smile is a big part of who I am. It wasn’t always that way. ...

Living with Treacher Collins Syndrome has presented me with many challenges. However, I have also received many opportunities and gifts that might not have come ...

My daughter Zoe is a bubbly, outgoing four year old who loves ballet, music, and swimming. Like most four year olds, her interests change all ...