AboutFace

AboutFace produces a variety of booklets, brochures, pamphlets, resource sheets for people with facial differences and the community at large. These are created to address the needs of all our members –families, children, adults, health care professionals and educators.

We offer AboutFace members a complimentary copy of our print resources and encourage health care providers to order a supply to support and educate their clients. To access our complete publication and resource list, please view our Order Form.

Publications To order one of our publications, please view our Publication and Resource Order Form.
	Facing it Together is a workbook and DVD to provide support, insight and effective strategies to deal with some of the major issues that you will face during the first few years of your child’s life. Facing it Together is free for Canadian parents of children under the age of 5 with a facial difference. Watch the Executive Cut, Preview our Workbook and Order Now!	Jessie’s Blessing is a picture storybook and interactive CD for kids ages 3-7. Click here to learn more!
	Making Faces: Logan's Cleft Lip and Palate Story is a picture story book that documents the cleft treatment process from birth to young adulthood through the personal journey of Logan Bristow. The story touches on many of the issues families face when their child is born with a cleft. For more information click here. \| preview the book >>	Facing Differences is an interactive educational resource (in-class video and program guide) for children ages 8-12. The independent format provides teacher accessibility and flexibility to direct learning on diversity issues within their classroom Click here to learn more!
	Building Bridges Across Difference and Disability: A Resource Guide For Health Care Providers is for professionals who have direct contact with people living with facial differences and disabilities.	Face Values is a collection of personal stories providing insight into the feelings, attitudes and self image of women living with facial differences.
	Another Face introduces the reader to five young Swedish people who were born with facial disfigurements. They share their thoughts and experiences in a series of insightful profiles by journalist and author Anna Lytsy and Elisabeth Ohlson Wallin, one of Sweden’s best-known portrait photographers.	Talking About Body Image, Identity, Disability and Difference: A Facilitators Manual is designed for professionals who want to implement workshops to help explore, develop and strengthen the social skills of individuals with facial differences and disabilities.
AboutFace Resource Sheets *NEW! ALL RESOURCE SHEETS AVAILABLE ONLINE! Please click the title to open the PDF.* Acquiring a Facial Difference Building and Enhancing Self Esteem: A Parent’s Guide Help Your Child to Cope with Teasing Successful Coping: Strategies that Work Preparing Your Child for Surgery Preparing Your Child for Social Interaction Tips for Teachers Transitioning from Teen to Adult in the Medical System When Your Child Starts or Changes Schools Words That Work Treating People With Facial Differences Helping Your Child Tell Peers About Their Difference
AboutFace Syndrome Booklets
	Acquiring A Facial Difference: Skin Cancer helps patients understand the physical and mental health challenges of acquiring a facial difference and provides information on types of facial cancer, treatment options, rehabilitation and options for support.	Apert, Crouzon and other Craniosynostosis Syndromes provides information on these craniosynostosis syndromes, details treatment phases, procedures and key psychosocial considerations for parents.
	Hemangiomas and Vascular Malformations includes an overview of these conditions for parents detailing treatment options, preparing kids for social interaction and an adult perspective.	Microtia explains the condition, impact, treatment timing and options, offers support to parents and an adult perspective.
	Moebius Syndrome details the condition for parents including associated medical problems, social considerations and the personal reflections of an adult living with Moebius Syndrome.
AboutFace Pamphlets
	The AboutFace General Pamphlet includes an overview of our programs and services and a membership registration form. It is available in English and French.	My Baby Has A Facial Difference is a guide addressing common medical, social and emotional issues for new parents as they begin the journey of raising a child born with a facial difference. It is available in English and French.
		Mon Bébé a une Différence Faciale est un guide qui adresse les questions médical, social et affectif pour les nouveaux parents où ils commencent le voyage d'élever un enfant né avec une différence faciale. Il est disponible en anglais et en français.
	Coping With Teasing and Bullying provides strategies and practical solutions to help kids deal and respond to these situations.	You, Your Child and the Craniofacial Team is a guide for parents to help understand and become effective participants in the “team approach” to medical treatment of craniofacial conditions. It is available in English and French.
		Vous, votre enfant et de l'équipe craniofaciale est un guide pour les parents pour aider à comprendre et à devenir des participants efficaces dans l’équipe médicale soins à un traitement médical des conditions craniofaciales. Il est disponible en anglais et en français.

AboutFace Suggested Reading List

The Church of 80% Sincerity - David Roche

This book follows author David Roche – a motivational speaker, through his journey dealing with his facial difference and gaining self-acceptance over the years. He shares his life experiences with humour, and encourages others who may be going through similar experiences with raw honesty. The Church of 80% sincerity is a great read for anyone, it is incredibly witty and inspiring.

Look for this book at your local bookstore or order online HERE.

Wonder – R.J. Palacio

August Pullman was born with a facial deformity that, up until now, has prevented him from going to a mainstream school. Starting 5th grade at Beecher Prep, he wants nothing more than to be treated as an ordinary kid—but his new classmates can’t get past Auggie’s extraordinary face. WONDER, now a New York Times bestseller and included on the Texas Bluebonnet Award master list, begins from Auggie’s point of view, but soon switches to include his classmates, his sister, her boyfriend, and others. These perspectives converge in a portrait of one community’s struggle with empathy, compassion, and acceptance.

Look for this book at your local bookstore or order online HERE.

An Autobiography of a Face - Lucy Grealy

At age nine, Lucy Grealy was diagnosed with a potentially terminal cancer. When she returned to school with a third of her jaw removed, she faced the cruel taunts of classmates. In this strikingly candid memoir, Grealy tells her story of great suffering and remarkable strength without sentimentality and with considerable wit. Vividly portraying the pain of peer rejection and the guilty pleasures of wanting to be special, Grealy captures with unique insight what it is like as a child and young adult to be torn between two warring impulses: to feel that more than anything else we want to be loved for who we are, while wishing desperately and secretly to be perfect.

Look for this book at your local bookstore or order online HERE.

Facing Up To It - Dawn Shaw

When Dawn has a fast-growing tumor removed shortly after birth, it not only reshapes the left half of her face, leaving it deconstructed and paralyzed; it reshapes her entire life. Her journey of self-discovery and acceptance involves the physical, the emotional and the spiritual. Reconstructive procedures during her childhood are necessary to improve jaw alignment and function, and each surgery presents its own set of experiences, challenges and complications. Yet each also leaves its own scars. She is teased, mocked and bullied, and friendships don’t come easily, but she has the love, support and protection of her parents, two siblings and a few close friends.

Through intense examination of herself and human nature, Dawn learns to embrace her uniqueness and manages to turn a disability into an asset. And for better or worse, she knows how to make an impression.

To order this book CLICK HERE, or visit Dawn Shaw's website at www.facinguptoit.com

Publications

AboutFace Resource Sheets

AboutFace Syndrome Booklets

AboutFace Pamphlets